Palliative Care and Quality of Life2
Palliative Care and Quality of Life Interdisciplinary Advisory Council

The Palliative Care and Quality of Life Interdisciplinary Advisory Council was passed into law in 2015, in order to address access to and quality of patient centered, family focused care in Maine.  Comprehensive palliative care services are designed to prevent and treat suffering caused by a medical illness or condition.

The Palliative Care and Quality of Life Interdisciplinary Advisory Council

This includes the management of pain and other symptoms from a physical, emotional, spiritual and psycho-social perspective in order to enhance quality of life.  Research shows that palliative care services are a cost-effective approach to helping individuals deal with advanced chronic or life-threatening illness in the comfort of their own home. However, market research data, compiled by Hospice Analytics, shortly after LD 782 passed into law, revealed that only 10 out of 34 hospitals in Maine reported having a palliative care program. Those that did, reported varying structures, staffing and services. In Title 5, Chapter 379, the Maine Hospice Council was listed as "Convening Authority" for the PC Advisory Council. Ten members are appointed by legislative leadership, three members are appointed by the Maine Hospice Council. Membership reflects an interdisciplinary composition. All appointees have either personal and/or professional experience with palliative care. Meetings are held quarterly or at the discretion of the co-chairs, but no less than twice a year. All meetings are open to the public.

Click Here for the PC&QOL 2024 Council Roster

 

 

Minutes and Agendas (2)

All Meetings are open to the public.
Pine Cone

Next Meeting:

September 27th- Venue/Time TBD

 

 

Minutes and Agendas

All Meetings are open to the public.
Pine Cone

 

Next Meeting:

April 19th, 2024, Viles Estate, 71 Stone St., Augusta - 9:00AM-12:00PM

 

Palliative Care Resources

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Click Here to Access the Maine Hospice Council State-Wide Resource Guide of End-of-Life Care Support Services:

A directory of medical and non-medical resources throughout Maine.

 

2022 Prevalence of Palliative Care in Maine Survey

 

Palliative Care Resource Sites

NASHP Logo website 168x157

 capcCenter to Advance Palliative Care

ACS 2011Palliative Care Resources

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get palliative Care Directory Palliative Care Directory

palliative DoctorsPalliative Care Web Resources

ucla health Palliative Care Resources for Professionals

UNC School of Medicine - Palliative Care Program

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mnhpclogo Resources for Providers

ACCC

american childhood cancer org

diagnostic eye centerA Comprehensive Guide to Vision Care for Veterans

meso resource group

ecdol logoA Senior's Guide to Fentanyl

Mesothelioma.com - Helping Mesothelioma Patients Since 1996

 

Information Related to Mesothelioma, Respiratory Health, and Support for Patients and Families

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Advance Care Planning Materials

Advance Directive Vs. POLST Forms

Maine Health Care Advance Directive Form

My Caring Plan

Choosing WiselyPromoting conversations between patients and clinicians

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index  A Guide to Social Security for Seniors

 

 

Elder Justice

National Indigenous Elder Justice Initiative

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 nursing home abuse justice

The Maine Long-Term Care Ombudsman Program

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Articles

The Hidden Harms of CPR

Research Report - Development of Palliative Care Quality Measures for Outpatients in a Clinic-Based Setting

CAPC- Psychedelics for Serious Illness: Five Things Clinicians Need to Know

Palliative Care in the New Era of Lung Cancer Treatment

Spotlight on Home-Based Palliative Care

Caring Info: What is the Difference Between Palliative Care and Hospice Care?

NASHP: Educating the Public about Palliative Care

My Caring Plan: A Thorough Guide to Terminal Agitation

Use of the Palliative Performance Scale (PPS)

What to Do When Someone Dies

Center to Advanced Palliative Care

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“The essential reference for those planning and starting home-based palliative care programs. The Guide outlines a process for designing a program that provides the highest quality care, is responsive to stakeholder priorities, and is financially and operationally sustainable.”-CAPC

To order, please visit the site

 

Brochures

American Cancer Society Cancer Action Network Palliative Care Brochure

American Cancer Society Cancer Network Pediatric Palliative Care Brochure

 

Publications

Medical Publishing, LLC is pround to present the 2017-2018 Maine Healthcare & Hospital Guide

RAISE Act State Policy Road Map for Family Caregivers: Public Awareness and Outreach to Family Caregivers

RAISE Initial Family Caregivers Report to Congress

Harvard Health Publishing: "New Guidelines on Opioids for Pain Relief: What You Need to Know"
 

Other Resources

cpac

Emotional PPE → Resources to Help Clinicians Cope With Moral Distress, Grief, and Trauma

Recognizing the threat to health worker well-being, CAPC has developed resources to address emotional, social, moral, and psychological suffering. We encourage you to share these resources with your colleagues who may benefit from them. Click here to access CAPC's toolkits

 

 

National Institute on Aging: "Understanding Different Types of Dementia"

CDC announced updates to the guidelines for prescribing, tapering or continuing opioid prescriptions for pain.

Link to guidelines

 

 

Hospice & Palliative Credentialing

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Certified Hospice and Palliative Nurse (CHPN) Computer Based Examination Candidate Handbook: This handbook contains all the information you will need concerning certification/re-certification. Including test dates and fees.

Access Handbook Here

 To access test site locations, click the link before and enter your zip code to locate the test site closest to you.

Click here

 

 

 

Join Our Email List

Hours:
Mon-Fri 8 am – 4 pm or by appointment
Sat/Sun - Closed
State & US Holidays - Closed

 

 

Maine Hospice Council

136 State Street, Suite 220, Augusta, ME 04330

P.O. Box 2239, Augusta, ME 04338

(207) 626-0651

info@mainehospicecouncil.org

 

 

 

 

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